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Not ignoring people, just too tired/depressed/in pain to do more than write this from my phone. Thanks for responses to my post last night i promise i will respond.
I am going to ask a question, because I’m having some problems and think that others might be able to help. I know there are a lot of spoonies out there in Tumblr land.
Recently my sister accused me of being addicted to pain medication and, despite the fact that I am clearly not, is refusing to allow me to see my nephew until I go see an addiction counselor.
Now, I have a prescription for Tramadol, 50mg, 3x a day. I last had it filled 2 months ago and the bottle is still about 1/2 full. I try to take Aleve and use a lidoderm patch when I need pain relief. I only take the tramadol if absolutely necessary. And my pain management doctor said that I could take stronger medication if needed. I refused stronger medicine as I didn’t want to start on that route before I absolutely need to.
I don’t know what to do. I’ve tried to explain that my symptoms are not something that are easy to resolve and that a normal life with fibromyalgia is not the same as a normal life for a healthy person.
Her terms are that I get counseling, get a job, and start being more social.
I lost my job in Sept. of 2012 because I was out so much for pain. I was told that I can go back when I get it under control. So, if that ever happens I do have an option for work.
I’m not a social person…at all. Never have been, never will be.
I have online support, I see my doctor regularly, and I don’t take anything I don’t need to.
I have Fibromyalgia, Chronic Fatigue, Hidradenitis Suppurativa, Raynauds, Migraines, Restless leg, Social Anxiety disorder, and depression. I know I’m forgetting something on that list too.
I don’t know what to do or how to explain it to her.
I’ve sent links with all kinds of information, including one to the spoon theory, but she either didn’t read them or doesn’t care.
Help, please. Someone.
(and sorry if I don’t reply, my head is pounding and I think I am going to go to bed. Whether I will sleep is anyone’s guess)
Now, according to my sister, the depression I suffer from is the cause of all of my other problems and not a symptom…
Also, apparently she thinks that it’s easy to make friends and interact socially with people.
Not with an anxiety disorder it’s not.
I’ve never had friends or been a social person. I don’t know why she thinks that will change now.
I have always been quiet and alone and, yeah, sometimes it bothers me, but I have gotten used to it.
I have internet friends,but apparently that isn’t good enough.
I told her that she’ll have to accept me using internet support groups because I’m not going to go to a counselor (again) to be told (again) that things are pretty much as good as they will be until I can get my pain and fatigue under control. Something which can’t happen if I don’t take my medication.
sometimes i doubt my own illnesses/disability what have ya, then I actually do something really basic like leave the house and I feel what it’s like the next day being totally drained and in pain, and I think, ahhhhh no this isn’t a normal thing, don’t worry kid, back to beddy byes for you.
169 notes (via misterlisa & aitchbanks)
If you’re a boy who walked up to younger/nerdier girls in the hallway during high school and said “hey my friend thinks you’re cute” and then burst into giggles along with said friend then I really hope you’re doing badly in life
people like this are the reason i cant believe anyone calling me pretty.
this happened to me a bunch
182,405 notes (via ravensmuse & princess---katie)
Do people not realize that the things they say can cause people to go into a deeper depression than they are already in?
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